Personal wish..... baby is in NICU

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Re: Personal wish..... baby is in NICU

Post  tasha222 on Fri Apr 13, 2012 3:35 pm

Thinking about you guys alot the last few days, How is he doing?

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Benji Update

Post  edominik on Sat Apr 14, 2012 9:41 pm

Benjamin seems to being doing better. On Monday, they scanned his head to check the fluid level. The fluid level actually dropped a little. Thank God. He is steadily growing now, as they have increased his feed. Today, he has grown to 2.5 pounds. I am so proud of him. I watched him get his tetanus shot yesterday. He did very well. Cried for only a few seconds. Amazing.

My wife Ashley and I are a little weary. She does not take it to well at times. We are financially flat broke and have a baby in NICU. Not the happiest situation. I get some work here and there teaching computer seminars, I am also trying to sell some items I have.

Actually, overall, I am amazed how well I am doing emotionally. I go every day to see him. My wife goes 6 days a week. God has blessed in this storm. I know He has. I guess I am still walking in faith. Day by day. Month by month. I know there will be a break through. Some way. some how.

Thanks for caring.

Sincerely,
Erich G. Dominik


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thinking of you all

Post  tigereyedcat on Sun Apr 15, 2012 1:57 pm

I was tearing up as I was reading today. My heart and thoughts and prayers go out to you.

Sending huge hugs and please keep us posted...


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Re: Personal wish..... baby is in NICU

Post  tasha222 on Mon Apr 16, 2012 10:15 pm

I'm glad you guys are doing well. I'm trying really hard to come up with something to help you guys. I'm having alot of issues financially trying to play catch up after being screwed out of 10,000 by pointleads. I'm a tad behind on my network payments. But slowly catching back up. As soon as I am able to help I'll send you guys something to help at least with gas to get you up there and back everyday.

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Benjamin took a turn for the worse....

Post  edominik on Sat Apr 21, 2012 11:09 pm

The hospital called us this morning and said that we had a very ill child and we should come now. He has come down with necrotizing enterocolitis. This is a disease of the digestive system. This can be fatal. They are attacking it with antibiotics and some physical procedures. They had three doctors and a specialist surgeon monitoring him all day. They will have to do immediate surgery if they detect a perforation. They are monitoring for dead pieces of the small intestine. My poor son had to be put back on the ventilator, picc line, and other things.

Please pray for Benjamin. We need all the help we can get. It may be weeks to get out of the woods on this. This is very serious.

Erich


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sending those prayers your way

Post  tigereyedcat on Sun Apr 22, 2012 9:23 am

Saying some big prayers for your lil guy...

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Re: Personal wish..... baby is in NICU

Post  tasha222 on Mon Apr 23, 2012 10:53 am

Oh my gosh I am so sorry. I am praying he gets well and fast.

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What a miracle!

Post  edominik on Wed Apr 25, 2012 12:07 am

Saturday was scary, Sunday got a little better. By Tuesday, the doctors were scratching their heads! They know he had the infection, no doubt what so ever. Now, can't find much of a trace of it.

Praise God!

PS: Got the prayer blanket! It is beautiful! Ashley and I love it! Please tell everybody thank you!

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so happy to hear it

Post  tigereyedcat on Wed Apr 25, 2012 7:45 am

So happy to hear that your lil guy is doing better...preemies are such lil miracles and I truly believe God has this special way of taking care of them and holding them extra close during the hardest of times. Still sending thoughts and prayers your way and waiting for more great news that your lil guy is doing awesome


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Re: Personal wish..... baby is in NICU

Post  tasha222 on Sat Apr 28, 2012 2:13 pm

Oh good I'm glad you guys got it and I'm Glad you guys love it. You can hold onto that and in 20-25 years when He's doing wonderful in college and Starting a family of his own you can look at that blanket and think back to this and Thank God for everything that he brought you guys through. So glad to hear Benjamin is doing better. Still praying.

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Thanks

Post  edominik on Sat Apr 28, 2012 10:50 pm

Thank you again, and you are right. God will bring us through. I know it. Smile

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Benjamin at 46 days, 3lbs 5oz, with mommy

Post  edominik on Sat Apr 28, 2012 10:53 pm


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Daddy putting him back into the incubator

Post  edominik on Sat Apr 28, 2012 10:55 pm


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Re: Personal wish..... baby is in NICU

Post  tasha222 on Tue May 01, 2012 3:15 pm

aww how cute he is. I cant believe its been 46 days already. Time really flies quick.

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70+ days

Post  edominik on Wed May 23, 2012 2:04 am

It has been a real roller coaster ride. Good news, Benjamin is now 4lbs 8oz! He is now totally bottle feeding They even started to talk of discharging him. However, he has a list of specialists that need to see him over the next year. Neurosurgeon, urologist, gastro, cardiologist, ophthalmologist, audiologist, etc.

We wheeled him up to surgery today, to get his double hernia taken care of, and they changed their mind on operating! They said he had a tethered spine, and could not use a spinal sedation on him. This is the first that we heard of a tethered spine! They told us earlier that they looked for it, but did not see it tethered. Crazy! He had a small hole in his heart, so he has to see a cardiologist to check on it. He has an undescended testicle, so that will be addressed. Also, he has hypo placia. His penis hole is in the wrong spot. Oh yeah, he also has a stage 2 ROP, a concern about his blood vessels in his eyes.

It makes my head hurt some days! Like today! I keep going on in faith and prayer. I know he will be all right, but the idea of multiple surgeries for his spine and heart are disconcerting.

Just needed to tell somebody about it all. Thanks for letting me post.

PS, he is still the cutest baby in all of the NICU.


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he is precious i love the new baby pictures

Post  tigereyedcat on Wed May 23, 2012 7:45 am

70+ days is awesome and it sounds like he is really gaining some weight...was thinking about you all and hoping to see you post soon...sending some prayers your way for your family. I'm sorry to hear about his complications, but it sounds like he is really coming along. So happy to see some pics of him, he is precioussssssss. Wow talking about discharging him that is just soooo awesome. Remember this rollercoaster ride will start to slow, the strings of specialist might be around for a bit but will only make sure he continues to do better. I hope to hear some great news in the days to come and of course some more pictures of your precious lil bean.


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Re: Personal wish..... baby is in NICU

Post  tasha222 on Thu May 24, 2012 4:45 pm

I am so glad he gets to come home soon. And I'm very glad to hear he is almost 5 lbs! Hopefully they can get all of the other issues taken care of and they dont effect him for long. Keep your head up and I'll continue praying that it all goes uphill from here.

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New news!

Post  edominik on Thu May 24, 2012 5:48 pm

Cardiology told us today that he has no holes in his heart anymore! They healed themselves! He also was cleared by the orthopedic specialist. No bone abnormalities! Thank you Jesus!!!!!

They gave us a date of Wednesday, May 30th for release and coming home!

Thank you all for all of the prayers!

Erich "Benjamin's Daddy" Dominik


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that is such awesome news...

Post  tigereyedcat on Fri May 25, 2012 6:54 am

Wow that is just so awesome...5 days and counting...ok now we need to see more pics lol.. as a mom of 2 i'm an absolute sucker for babies lol....now you'll have to keep posting updated pictures on your lil guy so we can see how big he is getting and how he is doing...i know you don't know me from anyone else but my lil girl and i put in an extra little prayer for you all at night and been following your story on here...God works miracles and your lil Benjamin is definantly one. Can't wait to see the post that you guys are officially home.

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Thank You!

Post  edominik on Fri May 25, 2012 9:04 pm

Dear tigereyedcat,

Tell your little girl that Benjamin's daddy says thank you for all the prayers. Let her know that her prayers helped baby Benjamin a whole lot! She must be a special prayer partner to be so helpful! God does work miracles, especially when special girls pray.


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:)

Post  tigereyedcat on Fri May 25, 2012 10:10 pm

sure will tell her she's 2 1/2 and one of my greatest joys (her 7 month old lil bro is my other greatest joy Smile we look forward to hearing more good news from you in the days to come.

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Aaaaaaaah

Post  edominik on Fri May 25, 2012 11:42 pm

That is so awesome. I will be sure to update when he comes home! Pics included! Razz

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another bump in the road

Post  edominik on Sun Jun 03, 2012 6:39 pm

Benjamin was not able to come home today. He had another low heart rate, so his stay is pushed back to Wednesday, at the earliest. Will be talking to the doctors tomorrow to see what is new. He may end up staying longer, because he has some surgeries scheduled.

You know, I always hated roller coasters, but it seems we cannot get off of this one! LOL Keep us all in your prayers. We need them!

Erich

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hugs

Post  tigereyedcat on Tue Jun 05, 2012 10:13 pm

Your lil guy is in our prayers every night..and I'll say an extra one tonight...hoping and praying your lil guy gets to come home on Wednesday and you can relax some and get off that rollercoaster....remember this is just the start, there are many many wonderful years to come. Hugs and prayers to you guys, please keep us all posted.

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UPDATE!

Post  edominik on Wed Jun 06, 2012 8:36 pm

He is home! Eating, sleeping, and pooping! Updates later!

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